2017 Delegates from New York


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Ari

Age: 10 Age at T1D diagnosis: 13 months Ten-year-old Ari estimates he has tested his blood sugar some 30,000 times in his life and endured 2,000 insulin pump site changes. But that hasn’t slowed him or his family down. They are active supporters of JDRF’s Westchester/Fairfield/Hudson Valley Chapter, where their JDRF One Walk team, ‘The […]

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Daniel

Age: 15 Age at T1D diagnosis: 12 Daniel wrote the book about living with T1D. Literally. As part of his mission to raise awareness about T1D, Daniel wrote a book targeted to pre-teens and teens to let them know they can overcome the challenges of living with the disease. An all-around idea man, Daniel is […]

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Drew

Age: 16 Age at T1D diagnosis: 3 Academics are very important to Drew—and his 4.0 GPA is proof of that. He also loves wrestling, which has become more manageable since he got his CGM. Drew is very committed to T1D advocacy. He says, “I have found so many great people who share my passion and […]

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Ethan

Age: 16 Age at T1D diagnosis: 9 Ethan accidentally diagnosed himself with T1D. He was helping his younger brother, Ari, test his glucose level, and decided on the spur of the moment to check his own. When he saw his own glucose level was more than 400, he wound up in the hospital where a […]

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Hannah

Age: 17 Age at T1D diagnosis: 6 Making the world a better place is a top priority for Hannah. As an aspiring human rights activist, Hannah works to make a difference for the T1D community. “I appreciate that being a good citizen requires us all to participate to make the world better,” she says. “My […]

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Kennedy

Age: 11 Age at T1D diagnosis: 7 Kennedy and her mom share more than the typical mother/daughter bond. The two of them also have T1D in common—as well as a commitment to seeing the disease eradicated. When Kennedy was diagnosed, the two marked the occasion by each getting an insulin pump to help manage their […]

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Mason

Age: 11 Age at T1D diagnosis: 9 Mason loves to play soccer with his travel team, ride dirt bikes and play Xbox. He recently took part in a 10-day long clinical trial for the Dexcom G6 sensor—and he hopes his participation will help make it easier to manage T1D. Mason is very committed to raising […]

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Matthew

Age: 17 Age at T1D diagnosis: 6 Matthew enjoys traveling, golf, basketball, and community service, specifically tutoring under-privileged kids. This year, he started a JDRF club at his high school. Matthew’s whole family has been involved with JDRF since his diagnosis in 2006; his mother is on the New York City Chapter’s Board of Directors […]

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Philip

Age: 17 Age at T1D diagnosis: 12 Philip is a junior in high school who plays volleyball and basketball. He also really loves driving, he says, “I am a typical teenager in most ways, except I have type 1 diabetes.” T1D advocacy is a family affair his parents and siblings, who are very involved with […]

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Sofia

Age: 15 Age at T1D diagnosis: 12 Sofia loves speaking different languages, such as Yiddish and Chinese, and taking pictures on the streets of her native New York City. She is very interested in activism and potentially becoming a journalist someday. Soon, she will be a participant in an upcoming closed-loop artificial pancreas trial at […]

2015 Delegates from New York


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Analeigh

Age: 17 Age at T1D diagnosis: 5 Analeigh draws her strength from her swim team experience. Her signature event is a 20–lap race. “So many people are impressed when they watch me swim and tell me they could never do that, and being able to do that with diabetes is even more impressive,” she says. […]

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Ashley

Age: 17 Age at T1D diagnosis: 9 Award–winning advocate Ashley has earned honors from the Pediatric Diabetes Program at Winthrop University for her “tireless effort and support of children with type 1 diabetes,” and she has also received the coveted JDRF Green Jersey award at the 2013 JDRF Ride to Cure Diabetes in Tucson. “I […]

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Ben

Age: 16 Age at T1D diagnosis: 4 Ben knows the power of pairs when it comes to managing T1D. He founded Ben’s Friends Buddy Program, affiliated with the JDRF New York City Chapter, which partners newly diagnosed kids with older kids who have had T1D for a longer time. Ben has been a buddy, mentoring […]

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Evan

Age: 7 Age at T1D diagnosis: 4 Evan’s made the front page! He was featured in the Wall Street Journal last year for his contributions to T1D technology. Evan himself was the inspiration behind the CGM monitoring system known as Nightscout, which his dad helped invent. The Nightscout system helps people monitor their loved ones’ […]

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Jessica

Age: 16 Age at T1D diagnosis: 12 Jessica dives headfirst into all her activities: Model UN, crew and the Girls Learn International Club. A certified scuba diver, Jessica has been on nearly 50 dives. She feared that T1D would limit her from her passion. “My dream of diving was temporarily shattered when I was diagnosed. […]

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Kaelyn

Age: 7 Age at T1D diagnosis: 2 “My type 1 diabetes does not stop me from doing anything,” declares Kaelyn. “I know, because Mom and Dad tell me that I can do anything I want. I just need to take a few more precautions.” Diagnosed at age 2, Kaelyn and her family now enjoy telling […]

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Mathias

Age: 14 Age at T1D diagnosis: 3 Mathias and his sister founded Sweet Siblings (sweetsiblings.org), a site available in English and Spanish that helps newly diagnosed kids and teens and their siblings navigate the ups and downs of life with T1D. “It is full of tips and tricks about how to make diabetes easier and […]

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Rowan

Age: 11 Age at T1D diagnosis: 10 Although Rowan wasn’t diagnosed until recently, she has been involved with JDRF from the very beginning. Her older brother learned that he had T1D when he was five years old. After her own diagnosis, Rowan says, “My brother took care of me and told me that we were […]

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Ryan

Age: 17 Age at T1D diagnosis: 16 A natural leader, Ryan is a senior cadet in a JROTC program with the United States Naval Sea Cadet Corps, where he oversees 40 cadets. He has also participated in the Coast Guard Academy Youth Leadership Conference. Recently diagnosed with T1D, Ryan now uses his position to educate […]

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Zacharey

Age: 17 Age at T1D diagnosis: 11 “I have not stopped doing the things I love or stopped living since my diagnosis,” proudly states Zack. “It has motivated me to work harder and not give up.” Some of those things Zack loves? Volunteering with less fortunate kids, playing sports and advocating for T1D research, to […]

2013 Delegates from New York


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Angel

Age: 12 Age at T1D diagnosis: 10 As a football player and advocate for T1D, depression, and bullying awareness, Angel is tackling big challenges. “Being a delegate is important to me because it is proof to all other kids like me that having type 1 diabetes doesn’t make you different; it means you have a […]

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Haley

Age: 14 Age at T1D diagnosis: 12 Haley understands the devastation T1D can wreak on families, yet uses it as motivation for her advocacy. Her older sister Karissa also has the disease, and their father lost his life to it after suffering from complications. “No family deserves to endure this kind of pain. This is […]

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Hana

Age: 8 Age at T1D diagnosis: 2 Hana wants to raise awareness and find a cure for T1D, so that the questions—and the frustrations—can stop. “When we went to the hospital, I wasn’t scared at all, not even when they pricked me. I still get frustrated and mad, but I am happy with who I […]

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Joshua

Age: 17 Age at T1D diagnosis: 8 Joshua remembers one of the early battles after his T1D diagnosis. He and his parents wanted a certain type of pump, but their hospital had only worked with one manufacturer. So they found another family that wanted the same pump. Together the two families persuaded the hospital to […]

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Max

Age: 14 Age at T1D diagnosis: 9 Max finds unexpected creativity in his T1D. “I realized I could use living with this disease as a source of inspiration.” His documentary, Advancements in Diabetic Medications, profiled the history and future of the disease, placing second in a local National History Day competition. An honor student, former […]

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Melissa

Age: 13 Age at T1D diagnosis: 7 Melissa has tirelessly raised more than $20,000 for JDRF through bake sales and lemonade stands, but she comes to Children’s Congress realizing that there is still work to be done. And she’s willing to put in the time. “I know that we have our work cut out for […]

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Patrick

Age: 13 Age at T1D diagnosis: 1 Patrick dreams about how a cure for his disease could transform daily life for him and other children coping with T1D. “I pray for me, my family, and all the other people diagnosed with type 1 diabetes that we will live to see the day a cure can […]

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Sydney

Age: 9 Age at T1D diagnosis: 2 Sydney is the only kid at her school with T1D, but because of her efforts, her classmates and teachers know a great deal about the disease. “Most people don’t know that much about type 1 diabetes. When I meet new friends, they stare at me getting my sugar […]

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Will

Age: 13 Age at T1D diagnosis: 4 Will loves to try new things—he enjoys bowling, golf, ice skating, fishing, coin collecting, and video games, to name a few. But if he had to pick favorites, he might say baseball and volunteering. When he’s not cheering on his home team—the Yankees—Will can often be found helping […]